My sweet seven year old, Quinn, has a very rare neuro-muscular disease. There's no cure and an unknown prognosis. All we know is what he deals with every day; pain, muscle weakness, waisting and eventually paralysis. The disease is mainly in his arms but it has moved around to his back and neck for the last few months. When sitting or laying still for any length of time, his body stiffens and is difficult to free up, just like old bones.
I just got through watching, "The Curious Case of Benjamin Button," and couldn't help but seeing such similarities with Benjamin's plight; a young mind in an old body. Hopefully someday there will be a cure, or at least a better treatment than what Quinn has now, a pill that his grandma also takes, Lyrica. (Though Quinn's dosage is larger.) His neurologist said that once the offending gene is found, research usually takes off. The gene to Heredity Neuralgic Amyotrophy was found around 2003.
Maybe one day my own Button won't have to feel pain and walk like an old man.